Do you ever think I would love to “make a wish”, I think many of us do, wish for winning lotto, love or as I do to have a loved one back in our lives even for a day.
Well dreams and wishes do come true sometimes; as many of you know my son Matthew who is 16 has a chronic illness called Cystic Fibrosis (CF) and now diabetes just to add to it all. Cystic Fibrosis is a chronic disease and effects lungs, digestion, sweat glands and means a shorten life span.
His health this year has not been great. We are still waiting on an operation date to help him breathe a bit easier, plus added medication and now two needles of insulin daily.
He has had a lot of challenges in his 16 short years of life, yet he inspires me daily with his attitude to his health and life handling himself way beyond his years.I must say Matthew never complains and say Mum why complain there are kids worse off than me.
If you saw what he had to do daily to keep well it is very heart breaking for a mum to see for their child.
Here is a picture of what Matthew wakes up to daily.
Here are just the tablets he takes everyday, and believe it or not these have been reduced!
The brown capsules (enzymes) are what he has to take when he eats anything at all they help him digest his food. Since being on them this year he has finally grown and put on weight for the first time in over a year.
Matthew was having another round of blood tests and we came home with him not feeling well at all to a wonderful surprise.
All though sometimes he faces hard times, and its not all sunshine and roses, this week my dear son's "Make a wish" was granted. A wonderful foundation that grants a wish for chronically ill children and Matthew wish was for a new computer.
Well it has all the bells and whistles and then some plus a computer desk as well.
The smile on his face is something I will never forget as long as I live, the happiness, shock and tears for Matthew to forget about his illness for a while with this wonderful surprise was unforgettable.
Here he is at his computer, may I add I haven’t seen him for days LOL.
Here is another Pic of My Daughter Nicole and her brother .These two are extremely close (they do fight don’t get me wrong) but that out of the way how truly close they are.
A sibling of a child with a chronic illness do suffer in some degree, the ill child comes first at many times, hospital admissions, appointments. "No we cant do that Matthew is not well". Nicole has never complained I wish sometimes there was something for siblings for their undying love and support. I Love you Nicole you are a very giving, a loving daughter and sister you are amazing beautiful spirit. I'm so proud of both my children make the most of your children and loved ones.